End of Life Issues
Articles
Books
Chat Rooms
Courses
Directories
Geographically specific resources
- Rochester, NY. A guide to
Rochester, NY specific health
resources.
Grief
Hospices
ListServs
- Deliverance - The right to Voluntary Euthanasia.
"Australian news media items on the campaign to institute Voluntary Euthanasia legislation nationally and in the states."
Web site: http://www.euthanasia.net/.
-
Eye of the Storm (In Honor of Papa and Mike)
(Eye of the Storm). "Purpose: We all loose loved ones physically to death. Recently, I have noticed that there are many
who have lost a "mate" to death....In a way, this loss was like losing at least half of themselves....My website tells of my
experiences as an individual who has known some wonderful people personally and also known many wonderful people from my
hospice R.N. work. I believe our sorrow is our joy in another reflection. We pass through the "eye of the storm" and we are
never the same. Would love to talk with others who have known grief or are in the middle of passing through "the eye of the
storm"...None of us are alone..and by sharing our loved ones "essence" we grow stronger and stronger....Please join me if
this interests you. MTVO(Thanks in Creek). :-)"
- Grief & Loss Issues. "A list for those
experiencing or inquiring about the death, dying & bereavement process..."
- GriefLossRecovery.com (GLR). "GriefLossRecovery.com
offers emotional support and friendship and provides a safe haven for bereaved persons to share their grief. This is a safe
place for people to mourn--emotionally, physically and spiritually." Website
http://www.grieflossrecovery.com.
Merchandise
Newsletters
- Caregiving Newsletter. "Denise Brown operates
The Center for Family Caregivers and owns and operates Tad Publishing Co., both based in Park Ridge, Ill. Through her
organizations, Denise helps persons who care for an aging relative. Through Tad Publishing Co., Denise publishes Caregiving
newsletter; authors books and manual for family caregivers and health care professionals; writes a monthly advice column for
Chicagoland's Senior News; and maintains the Caregiving.com web site."
New York State Resources
Online articles
Online Communities
Online discussion groups
Organizations
- Aid Association for Lutherans (AAL).
- Compassion
and Support. ""Individuals facing serious
life-threatening illness and approaching death deserve to be
treated with dignity, respect and compassion and to receive care
that is focused on the individual's goals for care. Families
need and deserve to receive support. To achieve their goals,
individuals need to plan ahead, know their choices, make sound
decisions and share their wishes with their loved ones and
health care professionals. This Web site aims to educate and
empower patients, families, health care and other professionals
to accomplish this goal."
- The Compassionate Friends. "Grief support after
the death of a child.
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief
following the death of a child of any age and to provide information to help others be supportive.
The Compassionate Friends is a national nonprofit, self-help support organization that offers friendship and
understanding to bereaved parents, grandparents and siblings. There is no religious affiliation and there are no
membership dues or fees.
The secret of TCF's success is simple: As seasoned grievers reach out to the newly bereaved, energy that has been
directed inward begins to flow outward and both are helped to heal."
- Hospice Foundation of America. "HFA is a nonprofit
organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to
caregiving, terminal illness, loss and bereavement." What is a
Hospice?
- National Association of Home Care (NAHC).
New York State Hospice Association Board of Directors.
- National Hospice and Palliative Care Organization. "The
National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and
palliative care programs and professionals in the United States. The organization is committed to improving end of life care
and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and
their loved ones.
Considered to be the model for quality, compassionate care at the end of life, hospice care involves a team-oriented approach
of expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's wishes.
Emotional and spiritual support also is extended to the family and loved ones. Generally, this care is provided in the
patient's home or in a home-like setting operated by a hospice program. Medicare, private health insurance, and Medicaid in
most states cover hospice care for patients who meet certain criteria."
- Partnership for Caring: America's Voices for
the Dying. "Partnership for Caring: America's Voices for the Dying
is a national nonprofit organization that partners individuals and organizations in a
powerful collaboration to improve how people die in our society. Among other services, Partnership for Caring operates the
only national crisis and informational hotline dealing with end-of-life issues and provides state-specific living wills and
medical powers of attorney."
- Well Spouse Foundation. "Illness and accident attack
without warning and can happen to anyone. No two people are living in the same situation and no two illnesses exact the same
toll. Alzheimer's is different from MS, heart disease is different from Parkinson's, stroke is different from accident. But
all well spouses face similar problems of anger, guilt, fear, isolation, grief, and financial threat whether they are
full-time caregivers or whether their partners have only moderately disabling illnesses.
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the
chronically ill and/or disabled. Well Spouse support groups meet monthly. Here, our members can share their thoughts and
feelings openly with others facing similar circumstances in a supportive, non-judgmental environment. WS support groups are
also an excellent source for information on a wide-range of practical issues facing spousal caregivers. Well Spouse support
groups exist or are being formed in many areas of the country. To contact a support group near you or to learn how to start a
group, please go to our 'SUPPORT GROUPS' page."
Radio Programs
- The End of Life: Exploring Death in America.
from National Public Radio. Includes transcripts, resources, bibliography, readings, tell your own story, and feedback.
The Web site contains audio files of the program segments.
Television series
- On Our Own Terms. Moyers on Dying. "What
challenges emerge from balancing medical intervention with care and comfort at the end of life? How can you maintain
meaning throughout your life? Learn about solutions for finding a better death and explore the options for humane care
for the dying."
Web Sites
- A Guide to Medical Information and Support
on the Internet. "The purpose of this guide is to provide the reader with the knowledge and resources for utilizing
the different areas of the internet to access medical information and support groups. If you have any suggestions or
questions, or need help locating information."
- After Death Communication Research Foundation (ADCRF). This
organization studies after death communication (ADC). ADC is defined as "A spontaneous experience of communication with
a deceased friend or family member."
- Beyond Indigo. "Our
hope is to support, educate and ease some of the fear connected with all forms of grief. We are also adding new tools to
support and enhance the care provided to someone who has experienced a traumatic loss."
- Finding Our Way: Living and Dying in America. "More and more
Americans are looking for better ways to face the emotional and practical realities of serious illness and dying. They are
seeking ways to balance high-tech medical interventions with comfort and compassionate care, and to achieve a sense of
dignity and meaning at the end of life. Finding Our Way: Living With Dying in America presents the real-life experiences of
Americans who have courageously struggled to find their personal answers to some of life's toughest questions. Their intimate
stories take us into the hospital and nursing home, through the struggles of caregiving, talking about serious illness,
medical decision making, arranging a funeral, and living with loss. We hear the conversations that helped them find their way
through these challenging situations."
- Hospice Care: The Common Pathway.
- Sutter Health System.
Evening Star Library.
"The Sutter Resource Library offers an extensive collection of books, videotapes, and audiotapes of
interest to anyone facing end-of-life issues.
Subjects in the Evening Star Library include death and dying, grieving, bereavement, recovery, spirituality, and the
pragmatic aspects of leaving life. The information in this collection will enhance the possibility of living
completely, and further the possibility of love and relatedness throughout life, including the end of life.
This collection was made possible through the inspiration and generous donation of Michael H. Plumer, M.D. It is
located within the Sutter Resource Library at 2800 L Street, Sacramento, in the Sutter Cancer Center building.
The books, videotapes, and audiotapes in this special collection are available to patients, loved ones, caregivers, and
other interested people. The public is welcome to come in and browse the collection. Sutter Resource Library members
may check out the materials."
-
Survivors of Suicide.
"The Survivors Division of AAS is dedicated to understanding the
issues of survivors of suicide
and incorporating these in suicide prevention efforts." Survivors
Division Chair: Mitzi Crawford Spears
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