Rochester, New York City Guide
Rochester, NY City Guide

© 1996-2015 Max Lent Communications




End of Life Issues

Also see End of Life Topic on




Chat Rooms

  • Groww Friends Helping Friends. "Here, on GROWW, you will find your partners in pain sharing their experience and strength. We have message boards, resource listings and secure chat rooms hosted by the most loving people on the internet for all who are grieving.

    The pain from losing a loved one, whether spouse, child, parent, sibling or friend, can be the most severe suffering one ever endures. Such is the power of grief. It can take over your life and become the centerpiece pushing everything else to the side or to the back. The pain can be overpowering, all consuming and incapacitating. It is agonizing. It is transient. It is NORMAL. Everyone’s grief is unique and everyone’s grief is the same. Death is a friend to no one.

    What is GROWW? It's a place where peer groups in an online chatroom environment teaches that you have permission to grieve". A place where you learn that the emotions you can't understand are seen in a "mirror image" of someone describing exactly what you are going through, and you say to yourself, "that's ME they are describing". So you learn you are not crazy - that the thoughts of the death that consumes you from the moment you wake from sleep that finally comes after endless waking hours, till night falls and the struggle for sleep comes again. It's a place where you find that every word you heard and could not believe yourself, suddenly are spoken to someone you see that is in pain and you realize, "that's ME talking" it becomes a place where you have learned that by receiving the support and understanding that helped you get through the pain (of losing a loved one) you are now helping someone who is where you have been. It's a place where you CAN recover from the overwhelming pain of grief. It’s a place of belonging..."



Geographically specific resources

  • Rochester, NY.  A guide to Rochester, NY specific health resources.




  • Deliverance - The right to Voluntary Euthanasia.  "Australian news media items on the campaign to institute Voluntary Euthanasia legislation nationally and in the states."  Web site:
  • Eye of the Storm (In Honor of Papa and Mike) (Eye of the Storm).  "Purpose: We all loose loved ones physically to death. Recently, I have noticed that there are many who have lost a "mate" to death....In a way, this loss was like losing at least half of themselves....My website tells of my experiences as an individual who has known some wonderful people personally and also known many wonderful people from my hospice R.N. work. I believe our sorrow is our joy in another reflection. We pass through the "eye of the storm" and we are never the same. Would love to talk with others who have known grief or are in the middle of passing through "the eye of the storm"...None of us are alone..and by sharing our loved ones "essence" we grow stronger and stronger....Please join me if this interests you. MTVO(Thanks in Creek). :-)" 
  • Grief & Loss Issues.  "A list for those experiencing or inquiring about the death, dying & bereavement process..."
  • (GLR).  " offers emotional support and friendship and provides a safe haven for bereaved persons to share their grief. This is a safe place for people to mourn--emotionally, physically and spiritually."  Website



  • Caregiving Newsletter.  "Denise Brown operates The Center for Family Caregivers and owns and operates Tad Publishing Co., both based in Park Ridge, Ill. Through her organizations, Denise helps persons who care for an aging relative. Through Tad Publishing Co., Denise publishes Caregiving newsletter; authors books and manual for family caregivers and health care professionals; writes a monthly advice column for Chicagoland's Senior News; and maintains the web site."

New York State Resources

Online articles

Online Communities

Online discussion groups

  • Aid Association for Lutherans (AAL)
  • Compassion and Support.  ""Individuals facing serious life-threatening illness and approaching death deserve to be treated with dignity, respect and compassion and to receive care that is focused on the individual's goals for care. Families need and deserve to receive support. To achieve their goals, individuals need to plan ahead, know their choices, make sound decisions and share their wishes with their loved ones and health care professionals. This Web site aims to educate and empower patients, families, health care and other professionals to accomplish this goal." 
  • The Compassionate Friends.  "Grief support after the death of a child. 
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.

The Compassionate Friends is a national nonprofit, self-help support organization that offers friendship and understanding to bereaved parents, grandparents and siblings. There is no religious affiliation and there are no membership dues or fees.

The secret of TCF's success is simple: As seasoned grievers reach out to the newly bereaved, energy that has been directed inward begins to flow outward and both are helped to heal."

  • Hospice Foundation of America.  "HFA is a nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to caregiving, terminal illness, loss and bereavement."  What is a Hospice?
  • Hospice Patient Alliance. "Serving hospice patients and their families is one of the greatest privileges and trusts a health care professional could ever be granted. Only those staff with great love, sensitivity, and compassion understand the real mission of hospice. Really, it is a "calling."
  • National Association of Home Care (NAHC).  New York State Hospice Association Board of Directors
  • National Hospice and Palliative Care Organization.  "The National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

    Considered to be the model for quality, compassionate care at the end of life, hospice care involves a team-oriented approach of expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's wishes. Emotional and spiritual support also is extended to the family and loved ones. Generally, this care is provided in the patient's home or in a home-like setting operated by a hospice program. Medicare, private health insurance, and Medicaid in most states cover hospice care for patients who meet certain criteria."
  • Partnership for Caring:  America's Voices for the Dying.  "Partnership for Caring: America's Voices for the Dying is a national nonprofit organization that partners individuals and organizations in a powerful collaboration to improve how people die in our society. Among other services, Partnership for Caring operates the only national crisis and informational hotline dealing with end-of-life issues and provides state-specific living wills and medical powers of attorney."
  • Well Spouse Foundation.  "Illness and accident attack without warning and can happen to anyone. No two people are living in the same situation and no two illnesses exact the same toll. Alzheimer's is different from MS, heart disease is different from Parkinson's, stroke is different from accident. But all well spouses face similar problems of anger, guilt, fear, isolation, grief, and financial threat whether they are full-time caregivers or whether their partners have only moderately disabling illnesses.

    Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse support groups meet monthly. Here, our members can share their thoughts and feelings openly with others facing similar circumstances in a supportive, non-judgmental environment. WS support groups are also an excellent source for information on a wide-range of practical issues facing spousal caregivers. Well Spouse support groups exist or are being formed in many areas of the country. To contact a support group near you or to learn how to start a group, please go to our 'SUPPORT GROUPS' page."

Radio Programs

  • The End of Life: Exploring Death in America.  from National Public Radio.  Includes transcripts, resources, bibliography, readings, tell your own story, and feedback.  The Web site contains audio files of the program segments.

Television series

  • On Our Own Terms.  Moyers on Dying.  "What challenges emerge from balancing medical intervention with care and comfort at the end of life?  How can you maintain meaning throughout your life?  Learn about solutions for finding a better death and explore the options for humane care for the dying."


Web Sites

  • A Guide to Medical Information and Support on the Internet.  "The purpose of this guide is to provide the reader with the knowledge and resources for utilizing the different areas of the internet to access medical information and support groups. If you have any suggestions or questions, or need help locating information."
  • After Death Communication Research Foundation (ADCRF).  This organization studies after death communication (ADC).  ADC is defined as "A spontaneous experience of communication with a deceased friend or family member."
  • Finding Our Way: Living and Dying in America. "More and more Americans are looking for better ways to face the emotional and practical realities of serious illness and dying. They are seeking ways to balance high-tech medical interventions with comfort and compassionate care, and to achieve a sense of dignity and meaning at the end of life. Finding Our Way: Living With Dying in America presents the real-life experiences of Americans who have courageously struggled to find their personal answers to some of life's toughest questions. Their intimate stories take us into the hospital and nursing home, through the struggles of caregiving, talking about serious illness, medical decision making, arranging a funeral, and living with loss. We hear the conversations that helped them find their way through these challenging situations."
  • Sutter Health System.  Evening Star Library. 

    "The Sutter Resource Library offers an extensive collection of books, videotapes, and audiotapes of interest to anyone facing end-of-life issues.

    Subjects in the Evening Star Library include death and dying, grieving, bereavement, recovery, spirituality, and the pragmatic aspects of leaving life. The information in this collection will enhance the possibility of living completely, and further the possibility of love and relatedness throughout life, including the end of life.

    This collection was made possible through the inspiration and generous donation of Michael H. Plumer, M.D. It is located within the Sutter Resource Library at 2800 L Street, Sacramento, in the Sutter Cancer Center building.

    The books, videotapes, and audiotapes in this special collection are available to patients, loved ones, caregivers, and other interested people. The public is welcome to come in and browse the collection. Sutter Resource Library members may check out the materials."

  • Survivors of Suicide. "The Survivors Division of AAS is dedicated to understanding the issues of survivors of suicide
    and incorporating these in suicide prevention efforts." Survivors Division Chair: Mitzi Crawford Spears



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